Open Directory - Health: Conditions and Diseases: Genetic Disorders: Down Syndrome: Personal Pages

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: Health
: Conditions and Diseases
: Genetic Disorders
: Down Syndrome
: Personal Pages (16)

See also:

Health: Conditions and Diseases: Musculoskeletal Disorders: Congenital Anomalies: Sirenomeliages (12)

This category in other languages:

Dutch (5)

Bill and Ria - Sharing experiences about parenting, life and Down syndrome. [Atom]
Bridget's Light - Pictures, stories, suggestions and links as well as details about Bridget's development, interventions and therapies. Hope and inspiration for parents with a new DS diagnosis.
Chase and More - Chronicle of a family's journey, raising a son with Down syndrome.
Darbi's Place - Pictures, a mom's story, and information about Darbi's open heart surgery.
Diagnosis Down Syndrome - Personal, loving stories from parents on adoption of a Down Syndrome baby. Also stories from those that found out during the pregnancy, and those that had a diagnosis after.
Down's Really Up - Jonathan's story.
ELIJAH-dot-NET - Pictures of Elijah at various ages, with links to information on Down Syndrome.
Fabio - Fabio's story, pictures, poems and information on Down Syndrome, as well as links and addresses of organizations and parents groups in the U.S. and worldwide.
Gabi's World - A real view into the life of a family and how they struggle with and celebrate Down syndrome.
George and Charley - Pictures and links.
Keeping UP With Matthew - Story of Matthew Kelley, a boy with Down Syndrome. Includes family pictures.
Logan's Link - Logan's story, Down Syndrome links, and picture galleries.
Meriel’s Story: Having a Child with Down’s Syndrome - Meriel provides an account of having a child with this condition, how she reacted to the news and her mixed experiences with healthcare professionals.
Rachel's Story - Rachel's mother charts her milestones. Includes a hospital diary on Rachel's heart surgery.
Rose - This family's story of how they almost lost their daughter after heart surgery, and her life since then.
Ryan's Story - Ryan's birth and diagnosis, Down Syndrome links, and family pictures.

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Last update: Thursday, August 26, 2010 10:00:12 AM EDT - edit

Description

Open Directory - Health: Conditions and Diseases: Musculoskeletal Disorders: Congenital Anomalies: Sirenomeliages

See also:

Health: Resources: Personal Pages (0)
Society: Disabled: Personal Pages (26)

Ashly's Skeletal Dysplasia - A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.
Caleb's Courage - Several videos about a baby's fight with MPSI-Hurler Syndrome.
Daniel Raymond Wickman - Provides information about the chromosomal disorder, Trisomy 18. Includes a blog about the pregnancy, birth, and life of the author's son Daniel and links for support and education.
In Balance with Arm Prosthesis - Personal story of a woman with a congenital reduction defect of her right forearm and how she achieved her present balanced state.
Joy's Page - Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.
MCAD Angel - Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.
Mowat-Wilson - Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area.
Robert Kenneth Picklesimer - Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.
Stephanie Jude Kuleba - Site set up in memory of Stephanie to promote awareness of malignant hyperthermia, a rare genetic disorder.
Story of Robert Purkis - A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life.
Trisomy 18 Angel - In memory of Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.
XXXXY Syndrome - Information on this rare chromosomal abnormality.

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Last update: Saturday, June 5, 2010 10:39:51 AM EDT - edit

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